Rare, orphan or low-prevalence diseases will be in the news next November when for the first time in Colombia and the third time in South America, the XI World Congress of Cornelia de Lange will be held in Bogotá.

Medical experts from countries including the United Kingdom, the Netherlands, Spain, the United States and Colombia will be present to speak with patients, their families and other health professionals from all specialties who manage patients with orphan diseases. About 400 participants are expected to attend more than 30 conferences.

A rich thematic agenda, as well as workshops for parents, family and caregivers will be available to reinforce and strengthen the approach to orphan diseases such as Cdls and reduce the emotional burden on those close to patients. Moreover, the event will have a recreational area designed for our honored guests: patients with Cornelia de Lange or other related pathologies.
 

Speakers

Dr. Feliciano Ramos Fuentes
Dr. Feliciano Ramos Fuentes
President of SAC World Federation CdLS. Pediatrician and Clinical Geneticist (ABMG-USA certified).
Dra. Sandra Yaneth Ospina
Dra. Sandra Yaneth Ospina
Pediatric Geneticist Professor at the National University of Colombia. Coordinator of the Orphan Diseases Committee of the Colombian Association of Scientific Societies.
Dr. Peter Gillett
Dr. Peter Gillett
Pediatric gastroenterologist with expertise in CdLS. Consultant at the Royal Hospital for Sick Children.
Dra. Carolina Cárdenas Vargas
Dra. Carolina Cárdenas Vargas
Specialist in Neuropsychology Master in Rare Diseases. Neuropsychologist IDEAl Foundation Javeriana University.
Dra. Anthony Kline
Dra. Anthony Kline
Pediatric Genetics Director, Harvey Institute for Human Genetics, Greater Baltimore Medical Center, Baltimore.
Dr. Shokery Awallada
Dr. Shokery Awallada
Endocrinologist Pediatrician
Dr. Eduardo Brignani
Dr. Eduardo Brignani
Psychologist graduated from UCA, Buenos Aires, Argentina. CdLS Spain Support Team
Dra. Erika Torres
Dra. Erika Torres
Speech therapist Master in Psychology, Inclusion and Disability developing diverse skills and abilities.
Director of the Support Group for Families CdLS in Colombia.

Schedule

Tuesday, 08 November 2022

# Session Speaker(s) Time Venue
1 Asamblea Federación Mundial Eduardo Brignani 02:00 P.M. - 04:00 P.M. Salón 0

Wednesday, 09 November 2022

# Session Speaker(s) Time Venue
1 Talleres para padres, hermanos y cuidadores Feliciano Ramos Fuentes 02:00 PM - 03:00 PM Salón 2
2 Conferencias Peter Gillett 11:30 AM - 01:00 PM Salón 1
3 Conferencias Eduardo Brignani , Anthony Kline 08:30 AM - 11:00 AM Salón 1

Thursday, 10 November 2022

# Session Speaker(s) Time Venue

Friday, 11 November 2022

# Session Speaker(s) Time Venue
1 Cena de clausura del congreso mundial ..... 06:00 PM - 08:00 PM Salón 3

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